I have a friend. No seriously I do and she told me last night that she is not a happy camper.
Having MS, she knows that it can be a cruel taskmaster with frequent reminders that it is there lurking, ready to pounce. Yesterday it didn’t so much pounce on her as jump up and down like a goat on a trampoline.
To say I find her a fantastic inspiration is an understatement. The way she has accepted and adapted to life with MS with a laugh and a shake of her head reminds me on my tough days to keep going.
I feel like all we ever talk about is our MS and how we live with it. Our conversations sometimes end up with us playing symptom blackjack. It’s a silly game and goes a little bit like this;
“I’ve got such a sore leg”
“Oh, both of my legs are sore today”
“Oh! well my hamstrings feel like they are made of concrete”
“I’ll take your hamstrings and raise you an exploded eyeball.”
You get the idea.
But this was a game I could not play when we were talking last night. The look of devastation on her face when she told me about opening her letter box and finding a Disabled Parking card that her Dr had organised for her. I’m not sure what was worse for her the fact that one day she might need to use it or the fact it had no expiry date.
That is why she was not a happy camper and, quite rightly so, threw a bit of a tantrum when she was holding it in her hand.
But, as only she can do, she got over her tantrum and like the aforementioned goats bounced back with a grin on her face.
I had a similar moment a few months back when my Dr said to me “It is part of your disability”. I don’t even remember why I was there but I do remember driving home a mess. It is short sharp reminders like these that are some of the hardest things to deal with.
My friend is surrounded by a fantastic group, but I do “pity the fool” that first suggests to her “you don’t look disabled” and asks her what right she has to be using the card. One of the reasons she has been able to accept this disease is the support of her friends.
And that is the purpose of this post. We have MS but because of the love of friends and family, it doesn’t have us.
Seeing all the heartfelt comments I get on the posts, and I do read all of them, is one of the things that helps me to be strong when I’m having a bad moment.
So thank you for your love and support. You make living with goats easier.