Apparently my name came up in a conversation over a bottle of brandy that was being steadily consumed under a bush outside a castle in Dunedin by a group of accountants. Seriously you couldn’t make this sort of stuff up.
Sitting with the group of steadily depreciating number crunchers was a workmate of mine. As the brandy bottle was passed around I was somehow dragged into the conversation that had previously been populated with tax, family trusts and cricket.
The conversation quickly turned when my workmate mentioned that I write these blogs and how much he enjoys reading them. I did mention the dwindling bottle of brandy didn’t I?
As we sat together laughing about this a few days later it struck me how he had no idea what MS really is. So me being me I told him. I could see in his eyes that when I told him about the science behind it and about what it could potentially do to me he wished he was back under that bush with the brandy.
“I’m so sorry, I had no idea”, was all he could say. Funny thing is I don’t remember laying it on all that thickly. Likewise I didn’t sugar coat it either.
This was all a few days ago and since then I have been thinking a lot. In the last year I’ve posted about some of what I live with and how I live with it. While I hope it provide insight and understanding to you it doesn’t answer a glaringly obvious question.
What the hell is MS?
MS stands for Multiple Sclerosis. It is a degenerative condition where the body’s immune system attacks the myelin sheath around the nerves (think of the plastic covering around a piece of wire) and in the brain. When the inflammation dies down it leaves scars ( Sclerosis ) in the myelin. When the nerves are trying to send a message to the body and there are lumps of scar tissue in the way, the message doesn’t always get there. The gradual buildup of scar tissue in the central nervous system is what causes the disabilities that are normally associated with MS. There is also a plethora of side effects that people have that you have no idea about which is why MS is often referred to as an invisible disease.
Like a good brandy has complexities, so does MS (OK! So that is a bit of a tenuous link but please bear with me ). Because the brain and central nervous system are so incredibly complex and the MS can, and does, strike anywhere MS is referred to as a ‘snowflake disease’. I will cover the different types of MS in another post and have a crack at explaining some of the unseen side effects as well.
Since the day that I started these posts I have been thinking of a way to describe MS. At no point in time did I think I would end up drawing a correlation with drunk accountants at a castle and invisible snowflakes. However, a night under a bush with a bottle of brandy will leave you feeling a bit the worse for wear. Likewise with MS the fatigue, nausea and lack of coordination draw some quite wonderful parallels.
Hopefully you now know a little more about what MS is. Please remember that even though I have MS – it doesn’t have me.